You haven’t heard from me for quite sometime and I promised that I will always be here for you guys no matter what to share love and happiness. Honestly, I really don’t know what to say, even where to begin my blog today. I have thought for a long time on how I could get in touch with you again, guess I finally find my come back more inspiring.
I always want to make people happy, give inspiration, and share words of encouragement. But lately, I found happiness, inspiration, and encouragement from someone else’s story. My heart was in deep pain and for the first time I evaluated myself, how tough am I really?
I was surfing the net when I found a shared video on my wall from one of my friends. The first thing I did was to LIKE the video without even watching it. However, I noticed the title of the video and that invites me to view it.
Here’s the link for the video:
Well first, I don’t have any idea what SMA is, so I really don’t have any idea what the video is all about, but the preview picture on the video with a little kid lying on the bed with the tubes on took my attention.
And then it is where it all started. I became a fan of this little kid with overwhelming courage and strength despite his condition. I fell in love with this baby (Yeah, I call him my baby). I found the Facebook Page SMA It Forward with Cashel and I LIKE it, I started to read posts about different angels from different parts of the world having the same condition like Cashel. My heart crushed and I was teary-eyed to see these little angels suffer. So I decided to help Cashel get 1 million LIKES before his 16th birthday, that’s just even a little help, but yes, I’m doing this because this is the least help I can offer.
I started posting the same video on Facebook groups that I belong, and tell them to like the page. I’m not even sure if some of them did, but I’m positive that God will touch their hearts and help us spread the word.
I started learning about SMA from Cashel’s page and I understand how critical the situation is for a newborn child.
Here’s more information from SMA It Forward With Cashel’s Page so you can have a better understanding, and you can follow.
SMA It Forward to someone and raise awareness of SMA. My goal is to have reached 1 million people by my birthday so SMA can get conquered! Every time you SMA It Forward you help raise awareness and can save a child’s life!
HI! My name is Cashel Gardner(pronounced Cash ul, and I am a boy 🙂 ) and I have Spinal Muscular Atrophy (SMA). The doctor told my parents I would die before I turned 2 years old, Boy oh boy were they WRONG! I am now 15 years old and have NO plans on leaving Earth anytime soon but, I do have a goal to accomplish by my 16th birthday and I need YOUR HELP!So lets start with what the heck Spinal Muscular Atrophy (SMA) IS:
This is straight from Wikipedia; Spinal muscular atrophy (SMA) is an incurable autosomal recessive disease caused by a genetic defect in the SMN1 gene which codes SMN, a protein necessary for survival of motor neurons, and resulting in death of neuronal cells in the anterior horn of spinal cord and subsequent system-wide muscle wasting (atrophy).Spinal muscular atrophy manifests in various degrees of severity which all have in common general muscle wasting and mobility impairment. Other body systems may be affected as well, particularly in early-onset forms. Spinal muscular atrophy is the most common genetic cause of infant death.
Now this is straight from me; Spinal Muscular Atrophy is a genetic disease that causes a baby or child to become completely paralyzed from head to toe but can feel everything. It happens at different degrees with the worst form Type 1 (which is what my sister and I have) to cause death by 18 months of age. We cannot sit up, hold up your own head, swallow or even breathe on our own, which is why death will happen unless intervention is used.By the way I just want to thank my mama and dada for using these methods and machines to give me life.
There are a few things I want you to know about me before we get to my goal. First, I have always felt that I am special and God has a job He needs me to do here on Earth. I do not feel like I am weird, in fact when I am out and people stare at me it doesn’t bother me at all. My mama has taught me many things and one was that it is good to be different and I embrace my difference from everybody walking around. Also, I want to find a cure for SMA but I do not want it for me, I want it for my sister Allie so she can dance with a boy at her senior prom, I want it for all the babies and young children so they can grow up and find another way to be different and important, because let’s face not all SMA kids are going to be as happy laying in bed all day and not being able to move, eat or even breathe on their own as I am.
I feel it is time for me to step up and start the work God needs me to do and my first goal is to teach the world what Spinal Muscular Atrophy SMA is and to show the world ALL the AMAZING kids that have SMA.So I created SMA IT FORWARD with Cashel because I believe even from my bed I can reach the world and bring awareness about SMA and help to get a cure, and there is a cure in sight! With the work of Dr. Brain Kaspar and his gene therapy we could have a cure in the next year! So here is what I want to do, EVERYDAY I am going to reach out to someone and tell them about SMA and how to help and then I will ask them to SMA It Forward to another person and so on and so on. It is my version of Pay it Forward. My goal is to get likes on this page for everyone who will SMA It Forward, Has SMA it Forwarded and will continue to SMA It Forward! I want to start reasonable and have 100 likes in a week and 1000 likes in a month to my goal of 1 MILLION by my birthday on January 10,2013. That means 1 MILLION people will know what is killing these sweet babies and help conquer this disease. Am I crazy for trying? I don’t think so. I think it is crazy to let this disease go on without spreading the word. So are you in? Like my page and SMA It Forward with me!
I would also like any input from families with SMA children that will help educate others about SMA, pictures and stories posted on here from other families with SMA and anything else that you might find helpful, fun and inspiring for the world to know about us SMA kids and families!
It is so amazing how a little boy can update, post, likes comments, upload pictures with just one hand and yet we see such a beautiful smile on his face and such a positive character. It made us feel guilty about how we complain about our lives, about our problems, about the situation we are in, yet Cashel with his curent condition manages to stay strong.
I hope this gives you a lift in your faith and will make your hopes high. And if you have time to read this, I hope you will also have time to check Cashel’s page and hit LIKE so you can be part of his MISSION and to make our little boy happy on his 16th birthday when he reached 1 Million Likes from caring and loving people like you. Let us share our love to these angels guys, they need our support and lots and lots of love.
All over the globe, people find faith, hope, and love from Cashel.
Below are some few of the many comments people posts on Cashel’s page.
I really hope this touches your heart as well.
Let us take 2-3 minutes of our time and visit SMA It Forward With Cashel’s Facebook Page (click here) and hit the LIKE button . It’s not a waste of your time, it’s a joy in your heart. Trust me, you will also love these children.